Purple Sunshine - For All Caregivers, Welcome!
  • Home
  • Smile
  • Cure
  • Care Tips
  • Your Story
  • Theme Song

How do teenagers deal with parents that have Alzheimer's disease?

3/10/2011

2 Comments

 
This story comes to us from Rhonda Brantley.  Wow, I wonder how teenagers deal with parents afflicted with Alzheimer's.  
____________________________________________________________________________________________________
I am a 24/7 caregiver. My husband was diagnosed with Early Onset AD in October 2007 and is about stage 5.5 We have seven children, the youngest was 14 when he was diagnosed. Sad that there is very little out there to assist with teen grief. Forced to close a large business, I returned to school and now build websites at home. Its certainly sometimes hard to concentrate on the tasks at hand as at this stage he's a pretty needy guy. We've been through one clinical trial and find that any help coming in for just a couple of hours a few days a week is too much distraction to the routine and routine is critical at this point. I get out on Wednesdays to lunch with friends or just wander around Walmart, but its not enough. In the beginning, I just took it all on myself not wanting to burden anyone else with it. Now, I share. I began writing about daily living with Alzheimer's to document my feelings and plight, issues, stories and it certainly helps. You can find my blog www.alzheimersdiagnosis.blogspot.com. Thanks ~ RB
2 Comments
R. Barr link
4/28/2011 07:16:48 am

I have a very passionate interest in children of dementia patient's and in grandchildren of such. Right now I know of a person in our area who is dealing with early onset with her husband and has an 11 year old. Our child was 9 when her grandmother developed dementia and 23 last year when we buried her grandmother. We often struggled to be in two places at the same time. My child's outlet was her music. I would love to talk to you more about this subject --- I really feel there is a need to nationally bring this issue to the attention of others. Schools need to realize this issue can effect student outcomes and other issues.My site www.tougherlove.org shares a little of our story.

Reply
Rhonda Brantley link
7/23/2011 01:20:29 pm

I am sorry that I am just seeing this post. Am passing your site on to my kids now and hope that you will keep in touch. Thanks, RB

Reply

Your comment will be posted after it is approved.


Leave a Reply.

    Author - Sharon Kim

    My mother was recently diagnosed with Alzheimer's.  It took our family 3 years to get proper diagnosis.  My sister and my father who are the primary caregivers for my mom are going through extreme challenges dealing with the impact of this disease.  This is what inspired me to create and dedicate 4URLOVE to all the caregivers of Alzheimer's patients in the world for their commitment, love, sacrifice and unfathomable patience. 

    Archives

    June 2011
    April 2011
    March 2011
    February 2011
    January 2011
    December 2010
    November 2010
    October 2010

    Categories

    All
    Affirmation
    Alzheimers
    Bath
    Caregiving
    Change
    Change Management
    Cooking
    Courage
    Daycare
    Dementia
    Denial
    Devotion
    Diagnosis
    Dinner
    Doll Therapy
    Early Dementia
    Emotional Swings
    Exercise
    Family
    Fear
    Feelings
    Finding Cure
    Forgiveness
    Getting Buy-in
    Gift Of Life
    Grief
    Grieving
    Hiding
    Honesty
    Hospice Care
    Hygiene
    Ideas
    Leadership
    Lifestyle Changes
    Love
    Medication
    Memory And Emotional Connection
    Memory Loss
    Missing A Loved One
    Outburst
    Over-dose
    Persistence
    Poem
    Promises
    Quality Care
    Separating With Your Loved One
    Shower
    Smile
    Support Group
    Suspicion
    Teenager
    Walking

    RSS Feed